People with dementia need 鈥渢o be listened to鈥
Tue 25 March, 2014A LEADING evidence-based researcher has called for people with dementia 鈥渢o be listened to鈥 in order to 鈥渞evolutionise鈥 services.
Professor Mike Fisher (pictured), who was speaking in his inaugural lecture as a professor at the 亚色视频, questioned whether people directly affected by dementia were asked for their views on the services provided.
Professor Fisher鈥檚 thoughts come after a systematic review conducted by the University鈥檚 Tilda Goldberg Centre (which specialises in social work research) identifying the experiences of people living with dementia and the services they receive.
鈥淭he research has found that people in their late 50s and early 60s, who are diagnosed with dementia, will now tell you what they want,鈥 said Professor Fisher, who joined Bedfordshire in 2012.
鈥淧ersonal user input will revolutionise dementia services, but they (people with dementia) need to be listened to.鈥
He added: 鈥淚f we are assessing the quality of scientific research that underpins policy, we have to question whether the people who use the services are included in that research, and their definition of what counts as an outcome.
鈥淚 don鈥檛 see how scientific researchers can be in a position to say they have investigated the outcome of a community mental health service, for example, and not ask the people who are receiving the service, whether the outcomes were the ones they wanted.
鈥淚f that is happening then we are simply saying that what professionals and service providers want as outcomes are the only outcomes that matter 鈥 which is simply not true.鈥
Professor Fisher has enjoyed a distinguished 30-year career in research and development in social work, including a five-year stint as Director of Research at the National Institute for Social Work
Professor Michael Preston-Shoot, Deputy Director of the Tilda Goldberg Centre, commented: 鈥淚n my position at the University, I have been lucky enough to dream about my ideal team.
鈥淎nd I am fortunate enough not only to have been able to dream, but I have also been able to secure a number of people who I always thought would be part of that team. Professor Fisher is one of those and it is a pleasure to have him working here at Bedfordshire.鈥
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